Scandinavian Journal of Disability Research
Author:
Keywords:
autism, non-verbal, voice, Science & Technology, Life Sciences & Biomedicine, Rehabilitation, swinging, voice without subject, leading-following, bodying, VOICE, 1605 Policy and Administration, 1607 Social Work, 1608 Sociology, 4407 Policy and administration, 4409 Social work
Abstract:
This paper draws on the making of a short video, called Swinging Together, produced in the context of an artistic participatory research project with people communicating beyond words. Our aim is to investigate how new materialist theories disrupt the production of ‘voice’ while working with a person labeled as ‘non-verbal’. We critique dominant functionalist and medical perspectives which reify ‘non-verbal’ only as a lack. In disrupting ‘voice’, we learn how important it is not to search for a magical closure, a final singular form, or (special) method with instructions to follow, but to focus on the relational and procedural. Concepts as ‘leading-following’ (Manning 2009) ‘voice without subject’ (Mazzei 2016) and ‘bodying’ (Manning 2016) shape our encounter with Heleen, an 18-year-old young woman commonly considered as autistic, non-verbal, strange, and out of place. In scrutinizing concrete practices which she desires we are searching to make sense of how Heleen experiences the world.