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Title: Coping with twins discordant for intellectual disabilities: the mothers' view
Authors: De Vos, Bernice ×
Jacobs, Nele
Vandemeulebroecke, Lieve
Derom, Cathérine
Fryns, Jean-Pierre #
Issue Date: Aug-2002
Series Title: Twin research : the official journal of the International Society for Twin Studies. vol:5 issue:3 pages:227-30
Abstract: In this exploratory study of 15 families with a twin-pair, of which one has an intellectual disability, the Nijmegen Questionnaire on Childrearing Situations (NQCS) was used to ask mothers about their perceptions and experiences of parenting. An interview with the mothers was done to understand the initial stages of coping with this double problem: educating a twin-pair and a child with an intellectual disability. Four groups of mothers were identified, depending on whether they accepted the intellectual disability of their child and/or whether they perceived their children as a twin-pair or not. Finally, some critical questions for further research and management were formulated.
ISSN: 1369-0523
Publication status: published
KU Leuven publication type: IT
Appears in Collections:Clinical Genetics Section (-)
Department of Human Genetics - miscellaneous
× corresponding author
# (joint) last author

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