Author:

Keywords:

Science & Technology, Life Sciences & Biomedicine, Geriatrics & Gerontology, Dementia, wandering, Electronic tracking device, Principle-based ethics, Ethics, Systematic review, GLOBAL POSITIONING SYSTEMS, SAFER WALKING, PEOPLE, SURVEILLANCE, HOME, TECHNOLOGIES, DECISION, NEEDS, GPS, Beneficence, Caregivers, Electronics, Humans, Personal Autonomy, Principle-Based Ethics, 1103 Clinical Sciences, Geriatrics, 3202 Clinical sciences, 4206 Public health

Abstract:

BACKGROUND: Wandering is a behavioral symptom of dementia that often results in patients eloping from home or care facilities, leading to high-risk situations for injury or death. To mitigate this serious problem, caregivers use electronic tracking devices (ETDs) to manage wandering. As these devices can track, record, and monitor wearers, profound ethical questions are raised related to their use in this vulnerable population. The objective of this review was to identify the ethical frames, concepts, and arguments used in the normative literature that focused on ETDs in dementia care. METHODS: We conducted a systematic literature review of normative literature that focused on ETDs in dementia care. RESULTS: Twenty-two articles met the inclusion requirements. The majority of articles utilized a principlist approach, with arguments concerning ETDs largely falling under the four principles of biomedical ethics: respect for autonomy, non-maleficence, beneficence, and justice. Privacy and informed consent were specifically emphasized. The normative literature recognizes that ETDs may have a dual effect, potentially bolstering or eroding the values connected to each principle. CONCLUSIONS: The prevailing use of principlism in the normative literature on ETDs indicates that there is a need to pursue new ethical approaches and expand upon the few non-principlist approaches already in use. In addition, many of the ethical issues around ETD use involve value-laden questions present during their design. Therefore, future ethical orientations or frameworks should account for ethical questions that exist along the design continuum on the use of ETDs.