Validation of the

Burisch, Johan; Gisbert, Javier P; Siegmund, Britta; Bettenworth, Dominik; Bohn Thomsen, Sandra; Cleynen, Isabelle; Cremer, Anneline; Ding, Nik John Sheng; Furfaro, Federica; Galanopoulos, Michail; Grunert, Philip Christian; Hanzel, Jurij; Knezevic Ivanovski, Tamara; Krustins, Eduards; Noor, Nurulamin; O'Morain, Neil; Rodríguez-Lago, Iago; Scharl, Michael; Tua, Julia; Uzzan, Mathieu; Yassin, Nuha Ali; Baert, Filip; Langholz, Ebbe

doi:10.1093/ecco-jcc/jjy015

Validation of the "United Registries for Clinical Assessment and Research" (UR-CARE), a European online registry for clinical care and research in Inflammatory Bowel Disease

Author:

Burisch, Johan

Gisbert, Javier P ; Siegmund, Britta ; Bettenworth, Dominik ; Bohn Thomsen, Sandra ; Cleynen, Isabelle ; Cremer, Anneline ; Ding, Nik John Sheng ; Furfaro, Federica ; Galanopoulos, Michail ; Grunert, Philip Christian ; Hanzel, Jurij ; Knezevic Ivanovski, Tamara ; Krustins, Eduards ; Noor, Nurulamin ; O'Morain, Neil ; Rodríguez-Lago, Iago ; Scharl, Michael ; Tua, Julia ; Uzzan, Mathieu ; Yassin, Nuha Ali ; Baert, Filip ; Langholz, Ebbe

Keywords:

Science & Technology, Life Sciences & Biomedicine, Gastroenterology & Hepatology, Inflammatory bowel disease, Crohn's disease, ulcerative colitis, UR-CARE, ECCO, database, registry, CROHNS-DISEASE, COHORT, EPICOM, Adult, Biomedical Research, Data Accuracy, Europe, Female, Humans, Inflammatory Bowel Diseases, Internet, Male, Observer Variation, Registries, Reproducibility of Results, 1103 Clinical Sciences, 3202 Clinical sciences

Abstract:

The "United Registries for Clinical Assessment and Research" (UR-CARE) database is an initiative of the European Crohn's and Colitis Organisation (ECCO) to facilitate daily patient care and research studies in inflammatory bowel disease (IBD). Herein, we sought to validate the database by using fictional case histories of patients with IBD that were to be entered by observers of varying experience in IBD.