Title: Parents' experiences with requesting carrier testing for their unaffected children
Authors: Vears, Danya ×
Delany, Clare
Massie, John
Gillam, Lynn #
Issue Date: Mar-2016
Publisher: Williams & Wilkins
Series Title: Genetics in Medicine vol:Ahead of print
Article number: 10.1038/gim.2016.24
Abstract: International guidelines generally recommend delaying genetic carrier testing in children until the child reaches the age of majority or is mature enough to be involved in the decision. Several studies have shown that carrier testing of children does occur in some instances, particularly in siblings of a child affected with a genetic condition. However, little research has explored parents' experiences with the testing process, the impact of knowing a child's carrier status, and whether parents communicate carrier information to their children.
ISSN: 1098-3600
Publication status: accepted
KU Leuven publication type: IT
Appears in Collections:Interfaculty Centre for Biomedial Ethics and Law
× corresponding author
# (joint) last author

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