Development of the Performance of the Upper Limb module for Duchenne muscular dystrophy
Mayhew, Anna × Mazzone, Elena S Eagle, Michelle Duong, Tina Ash, Maria Decostre, Valerie Vandenhauwe, Marlene Klingels, Katrijn Florence, Julaine Main, Marion Bianco, Flaviana Henrikson, Erik Servais, Laurent Campion, Giles Vroom, Elizabeth Ricotti, Valeria Goemans, Nathalie McDonald, Craig Mercuri, Eugenio #
Heinemann William Medical Books
Developmental medicine and child neurology vol:55 issue:11 pages:1038-45
An international Clinical Outcomes Group consisting of clinicians, scientists, patient advocacy groups, and industries identified a need for a scale to measure motor performance of the upper limb. We report the steps leading to the development of the Performance of the Upper Limb (PUL), a tool specifically designed for assessing upper limb function in ambulant and non-ambulant patients with Duchenne muscular dystrophy (DMD).