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Title: An estimation of the incidence and demographic picture of the major hemoglobinopathies in Belgium (from a confidential inquiry)
Authors: Gulbis, Béatrice ×
Ferster, Alice
Vermylen, Christiane
Dresse, Marie-Françoise
Vanderfaeillie, Anna
Delannoy, André
Labarque, Veerle
Philippet, Pierre
Kentos, Alain
Sztern, Bernard
Deprijck, Bernard
Vertongen, Françoise
Red Blood Cell Disorders Subcommittee of the Belgian Haematological Society #
Issue Date: 2008
Publisher: Marcel Dekker
Series Title: Hemoglobin vol:32 issue:3 pages:279-85
Abstract: An estimation of the incidence and demographic picture of the major hemoglobinopathies in Belgium has been approached through a confidential inquiry sent to 228 pediatric and adult hematological departments. Forty-two percent of responses showed that 417 patients are known in Belgium: 83% with sickle cell disease, 13% with beta-thalassemia (beta-thal) major, 2% with beta-thal intermedia, and 1% with Hb H disease. Twenty-five percent of the sickle cell disease patients and 54% of those suffering from a beta-thal major were older than 20 years. Three hospitals ensure the follow-up of 70% of the patients and are situated in Brussels, Belgium; a follow-up of less than 20 patients was reported at 21 centers. These results confirm that sickle cell disease is the major hemoglobinopathy in Belgium; it concerns mostly pediatricians but adult hematologists are also confronted with these pathologies. Therefore, it is necessary to implement integrated programs of prevention and treatment.
URI: 
ISSN: 0363-0269
Publication status: published
KU Leuven publication type: IT
Appears in Collections:Non-KU Leuven Association publications
× corresponding author
# (joint) last author

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