Title: The ENDOCARE questionnaire (ECQ): a valid and reliable instrument to measure the patient-centeredness of endometriosis care in Europe
Authors: Dancet, Eline ×
Ameye, Lieveke
Sermeus, Walter
Welkenhuysen, Marleen
Nelen, WLDM
Tully, L
De Bie, B
Veit, J
Vedsted-Hansen, H
Zondervan, K T
De Cicco, C
Kremer, J A M
Timmerman, Dirk
D'Hooghe, Thomas #
Issue Date: Nov-2011
Publisher: Published for the European Society of Human Reproduction and Embryology by IRL Press
Series Title: Human Reproduction vol:26 issue:11 pages:2988-2999
Conference: ASRM annual meeting 2010 edition:66 location:Denver date:October 23-27
Abstract: BACKGROUND: Endometriosis is prevalent and women need high quality care, which should be patient-centered. This study aimed to develop a valid and reliable patient-centeredness questionnaire, based on a defined concept of patient-centered endometriosis care (PCEC).
METHODS: A literature review, focus groups with patients and an expert panel defined PCEC with 10 dimensions. The ENDOCARE questionnaire (ECQ) was developed. Focus groups resulted in 43 specific statements covering the 10 dimensions of PCEC, for which the ECQ measured ‘importance’ and ‘performance’. Medical, demographic questions and an open question were added. The Dutch ECQ questionnaire was piloted and reciprocally translated in English and Italian. Patients with endometriosis from Belgium, The Netherlands, Italy and UK were invited to complete the ECQ online. Item analysis, inter item analysis and confirmatory and exploratory factor analysis and reliability analysis were performed. The theory-driven dimensions were adapted.
RESULTS: The ECQ was completed by 541 patients. Based on item analysis five statements were deleted. Factor analysis was performed on 322 questionnaires (only from respondents with partner). Insights from data-driven exploratory factor analysis suggested adaptations of the theory-driven dimensions. The reliability statistics of 9/10 adapted theory-driven dimensions were satisfactory and the Root Mean Square Error of Approximation was good.
CONCLUSIONS: This study resulted in a valid and reliable instrument to measure PCEC. For data presentation the adapted theory-driven dimensions of PCEC are preferred over the data-driven factors. The ECQ may serve to benchmark patient-centeredness, conduct cross-cultural European research and set targets for improvement.
ISSN: 0268-1161
Publication status: published
KU Leuven publication type: IT
Appears in Collections:Pregnancy, Foetus and Newborn (-)
Academic Centre for Nursing and Midwifery
Screening, Diagnostics and Biomarkers (-)
Sexual, Pelvic, Reproductive and Family Studies (-)
Research Group Experimental Neurosurgery and Neuroanatomy
ESAT - STADIUS, Stadius Centre for Dynamical Systems, Signal Processing and Data Analytics
× corresponding author
# (joint) last author

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