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Title: The patients' perspective on fertility care: a systematic review
Authors: Dancet, Eline ×
Nelen, Willianne
Sermeus, Walter
De Leeuw, Lisbeth
Kremer, Jan
D'Hooghe, Thomas #
Issue Date: Sep-2010
Publisher: Published for the European Society of Human Reproduction and Embryology by Oxford University Press
Series Title: Human Reproduction Update vol:16 issue:5 pages:467-487
Conference: ASRM annual meeting 2009 location:Atlanta date:October 17-21
Abstract: BACKGROUND Patient-centered reproductive medicine (PCRM) is important for quality of care, and this is increasingly being recognized. However, its scientific basis is unclear. The main research questions addressed in this review are: 'How has the patients' perspective on fertility care been examined (method and quality)?' and 'What is the perspective of patients in developed countries on fertility care?'. METHODS A systematic search of electronic databases was conducted and inclusion criteria with respect to eligibility and quality were applied. The methodology of the studies was critically appraised; the findings of the studies were synthesized and organized according to: patients' value clarification and assessment of service quality and dimensions of patient-centeredness. Additionally data on patient preferences and determinants of patients' perspective on care were collected. RESULTS In 51 selected studies, patients' perspective on fertility care was examined with (few or many item) questionnaires and/or qualitative interviews. Significant methodological problems were observed. Fertility patients attached importance to seven out of eight dimensions of patient-centeredness (Picker institute) and two new dimensions 'fertility clinic staff' and 'skills' were developed. Overall, fertility patients want to be treated like human beings with a need for: medical skills, respect, coordination, accessibility, information, comfort, support, partner involvement and a good attitude of and relationship with fertility clinic staff. Patients' preferences between procedures and demographic, medical and psychological determinants of their perspective were defined. CONCLUSIONS Fertility patients have 'human needs' besides their need for medical care. Evidence on PCRM is available but significant methodological limitations call for the development and validation of a European questionnaire.
URI: 
ISSN: 1355-4786
Publication status: published
KU Leuven publication type: IT
Appears in Collections:Reproductive Medicine Section (-)
Embryo and Stemcells (-)
Academic Centre for Nursing and Midwifery
Pregnancy, Foetus and Newborn (-)
× corresponding author
# (joint) last author

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