Title: Genetic research on stored tissue samples from minors: A systematic review of the ethical literature
Authors: Hens, Kristien ×
Nys, Herman
Cassiman, Jean-Jacques
Dierickx, Kris #
Issue Date: 16-Oct-2009
Publisher: Wiley-Liss
Series Title: American Journal of Medical Genetics A vol:149A issue:10 pages:2346-2358
Abstract: The potential benefits of biobank research are well known. Also, the ethical implications of genetic research on stored
tissue samples are well discussed in existing literature. The inclusion of tissue samples from minors may have significant scientific value. However, this inclusion raises specific ethical questions. We have performed a systematic search of the literature and found 21 theoretical and empirical articles dealing with the issue. After review, we distilled five clusters of themes: consent, risks, benefits, return of results, and ownership. We have described the different components of these themes, as they occurred in the literature and have provided a discourse on the topic.
ISSN: 1552-4825
Publication status: published
KU Leuven publication type: IT
Appears in Collections:Interfaculty Centre for Biomedial Ethics and Law
Department of Human Genetics - miscellaneous
Forensic Biomedical Sciences
× corresponding author
# (joint) last author

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