Title: Predictive genetic testing in minors for adult-onset genetic diseases
Authors: Borry, Pascal ×
Goffin, Tom
Nys, Herman
Dierickx, Kris #
Issue Date: May-2008
Publisher: John wiley & sons inc
Series Title: Mount sinai journal of medicine vol:75 issue:3 pages:287-296
Abstract: This article analyses the ethical discussion of predictive genetic testing in minors for genetic conditions for which there is no phenotypic evidence for disease at the considered time of testing mid for which there is currently no treatment available to prevent or forest ill the development of the condition. After a presentation of the position of various professional guidelines, we discuss the position and arguments that have been advanced in a recent article that defends a position that is opposed to the professional recommendations. In the choices we discuss the position of voluntary choices and autonomous and informed decision-making in a context of open communication. Thereafter, we analyze the nonmedical benefits mid related to this type of tasting. Finally, we critically analyze 4 arguments: the potential provision of good news if a test is performed, the unbearability of knowing, identity and adjustment, Lend parental anxiety mid Uncertainty.
ISSN: 0027-2507
Publication status: published
KU Leuven publication type: IT
Appears in Collections:Interfaculty Centre for Biomedial Ethics and Law
× corresponding author
# (joint) last author

Files in This Item:
File Description Status SizeFormat
IT024-2008-Mount-Sinai-Journal-Medicine.pdfOA article Published 108KbAdobe PDFView/Open


All items in Lirias are protected by copyright, with all rights reserved.

© Web of science