Author:

Keywords:

adult-onset genetic diseases, genetic diseases, genetic testing, predictive testing, huntington-disease, children, family, risk, attitudes, cancer, adolescents, responses, mutation, barriers, Science & Technology, Life Sciences & Biomedicine, Medicine, General & Internal, General & Internal Medicine, HUNTINGTON-DISEASE, CHILDREN, FAMILY, RISK, ATTITUDES, CANCER, ADOLESCENTS, RESPONSES, MUTATION, BARRIERS, Adolescent, Age Factors, Child, Child, Preschool, Ethics, Medical, Genetic Diseases, Inborn, Genetic Testing, Humans, Infant, Infant, Newborn, Minors, Predictive Value of Tests, 1103 Clinical Sciences

Abstract:

This article analyses the ethical discussion of predictive genetic testing in minors for genetic conditions for which there is no phenotypic evidence for disease at the considered time of testing mid for which there is currently no treatment available to prevent or forest ill the development of the condition. After a presentation of the position of various professional guidelines, we discuss the position and arguments that have been advanced in a recent article that defends a position that is opposed to the professional recommendations. In the choices we discuss the position of voluntary choices and autonomous and informed decision-making in a context of open communication. Thereafter, we analyze the nonmedical benefits mid related to this type of tasting. Finally, we critically analyze 4 arguments: the potential provision of good news if a test is performed, the unbearability of knowing, identity and adjustment, Lend parental anxiety mid Uncertainty.